In a longitudinal study of children, what procedure helps protect against compelled disclosure of identifiable information?

Securing a Certificate of Confidentiality is a crucial procedure for protecting the privacy of participants in a longitudinal study, particularly when identifiable information about children is involved. This certificate, issued by the National Institutes of Health (NIH), ensures that researchers cannot be compelled to disclose identifiable information about research subjects, even in legal proceedings. It offers an added layer of protection, allowing researchers to maintain the confidentiality of sensitive data and reassure participants and their families that their information will remain secure.

This form of protection is especially important in longitudinal studies where data collection occurs over time, potentially encompassing various sensitive topics that could lead to harm if disclosed. While obtaining informed consent from parents is essential, it primarily addresses ethical considerations regarding participation in research rather than the legal protections against compelled disclosure. Conducting the study in a private setting and utilizing anonymous surveys can enhance confidentiality, but they do not provide the legal safeguards that a Certificate of Confidentiality affords. Thus, securing this certificate is a key step in safeguarding the information collected in studies involving children.